Mended Little Hearts of Charlottesville is a support group based at UVA Children's Hosptial for families impacted by Congenital Heart Defects. We assist and support families in the Charlottesville area, the surrounding communities & the Shenandoah Valley.
For many parents, hearing the heartbeat of their unborn child becomes their first, loving bond to that child. It's no wonder, then, that discovering that their child has a heart defect, whether diagnosed in the womb, shortly after birth or during childhood, can be devastating.
Mended Little Hearts, a support program for parents of children with heart defects and heart disease, is dedicated to inspiring hope in those who care for the littlest heart patients of all. Mended Little Hearts offers resources and a caring support network as families find answers and move forward to find healing and hope.
For families with children who live with heart defects and disease, Mended Little Hearts of Charlottesville is a support network providing education, advocacy, awareness, and outreach.
Education – Speakers are invited to our meetings to discuss topics relevant to the CHD community. We also provide educational materials for home use such as handouts, books and medical record forms.
Advocacy – We work closely with the American Heart Association, the Adult Congenital Heart Association and the National Congenital Heart Coalition to help develop better programs and research for the CHD community.
Awareness – CHD is an unknown epidemic, therefore, we take every opportunity to spread awareness. We participate in health fairs, trade shows, blood drives and distribute brochures with facts and statistics at each event. We also partner with many local hospitals and cardiologist that distribute our materials.
Outreach – Our outreach program involves carebag distribution during hospitalization in-person and online visits, parent matching and family fun activities.
Visiting Program – Our program is in accordance with HIPPA and is a standardized MLH nationwide program. We also ensure that we follow additional hospital guidelines if applicable.
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